Hi All,
Happy Thursday.
Since the last post on the 4th of July a lot has happened. I have now started to make a weekly list and keep it with me where ever we go (mostly to doctors!) July 5th we had a pulmonary doctor appointment and had Julie's pulmonary cavity drained and we received 10 days of antibiotics to try to slow the fluid buildup down. Then Tuesday the 9th Julie had a dressing change and a quick blood draw to send off to Tempus in Chicago for special testing. The Burzynski Clinic requests the Tempus tests be done, U... W... does not support this testing so we have to go to a private clinic and pay out of pocket to have this done. It's really a shame that a "state-of-the-art, teaching hospital" isn't up on the latest technology and supportive of it, because they do their own testing, which so far has only been able to tell us that Julie's cancer is terminal and there's nothing they can do for her. Burzynski uses the results to monitor Julie's genetic make-up and how it's working to fight the cancer.
Wednesday the 10th we did acupuncture. Tuesday the 16th we went back to the pulmonologist for a re-check and thank God Julie did not have to have her plural cavity drained... so maybe the antibiotics are working... She does have some fluid build up but not enough to drain... we made another follow up appointment for 2 weeks and we'll see what happens then. Julie's cousin Jill and her husband Bob drove all the way from Florida to see Julie (and me) yesterday. Actually Bob's dad lives in Milwaukee so we were part of the visit. :)
Then yesterday we went to the acupuncturist and Patrick from the Burzynski Clinic called and said Julie's last scan showed her tumor was growing! Freaked the shit out of us and still is! We have had about 10 scans on that tumor and every time its something different... it's growing , it's shrinking , it's nothing but air, it's dead, it's partially dead, the inside is infected, the inside is dead!!! WTF??? I'm glad I haven't had a drink in months or my confusion, emotions and coping skills would probably be much worse.
So, all the reports I'm reading say the tumor shrank about 65% but the last scan says it grew 20 %...
We just don't know what to believe... thank God that he is looking out for me and Julie! Today is a total rest day, no appointments and trying to clear our minds and re-focus... the twins are here, we have enough energy to hang out with them. Amy just got back from running errands so she will proof read my post before she leaves. The picture today is of another month supply of Antineoplastons arriving at our door. These boxes mark month number 6 of this program! Next week, we have more doctor appointments and my 66th birthday!
Julie and I are still praying for all our friends and families that are going thru this shit, Craig, Adrian , Micheal, Barry, Di , I'm probably missing someone... my brain's kind of fried!
Keep praying ... Love to all... be safe and have fun!
Love Joe and Julie
Comments