Hi All, Happy Monday.
Today was one long day! Julie and I didn't sleep too well last night... the anticipation of our long Monday got the best of us!
First thing this morning, 3:30 am, I had to disconnect Julie from her pump to get ready for her PET scan.
We did fall back to sleep for a while but I was up at 6:30am and Julie was up shortly after.
We made it to the PET scan and were back home by 11am. We had lunch and Julie took a nap.
We were back at the Burzynski Clinic by 1:30 pm and didn't leave till 5:30pm.
Julie had all her vitals checked and it was blood work Monday. She then got more IV fluids.
After that I prepped her medicine and changed her dressing on her central line, talk about stressful. Everything has to be sterile, and I'm not a sterile kind of guy!
We got home, had a bowl of soup, Julie hit the couch and I was off to the airport to pick up Jake.
Finally sitting down to write everyone a quick note. I'm also including a description of the medicine that Julie is taking (ANP) Antineoplaston. This is some wild stuff!
That's all I got for now.
Thanks for all your love and prayers.
Love to all from Julie, Joe and Jake